March 2002

D.J. Jazzy Jess and the Fresh Priest

Jess sat at my computer. She and Jeremy and I had been in the computer room for at least an hour, talking about movies and families and life and cats and anything else that came to mind. We'd gotten past the important things and onto things that matter, like recommending new music to friends. Somewhere along the line, Geof had wandered in and joined us.

"Should I queue up anything else while I'm sitting here?" she asked.

I gave a recommendation, and Geof laughed. "Get to it, DJ Jazzy Jess." We all rolled our eyes, and then I muttered, "And what are you, the Fresh Priest?" For that I got a high-five from Jess and a "That's 'Fresh Pastor' to you, Ames!"

So, yes, I had everyone over tonight. Call it my own strange, instinctual reaction to dealing with the news about Dad. I knew that Jess was coming in tonight, and it seemed like it would be a nice idea to see if any of the other local folk would be interested in having dinner with the three of us.

Here to there and back again

So here we go, eh? Take a weekend away, a momentary breath from it all, and take a day or so to stand up straight and let your bones and brain cells settle back into their proper places.

It was the right thing to do, despite the boredom and tedium of driving from here to there and back again. A weekend at the Geek Farm, out east of Atlanta, will do just about anyone good.

Home again

Since discussions of ugly words like "metastases" and "radiation oncologists" had kept me a bit later at Mom and Dad's than I'd originally expected, I arrived at Colter's apartment late enough that it was pointless to consider attempting to go out for dinner.

Given that, we reverted back to the old college standbys: pizza and beer. Except that these days, our pocketbooks finally allow us to indulge our slightly esoteric tastes; the beer wasn't American and the pizza didn't have a drop of tomato sauce on it. We ate it, piled up on the couch in his living room, watching Robin Williams and talking about music.

In other words, normal life.

Haven't had much of that lately.

For days like these, victories get measured in the smallest of things. Today's victory was realizing that Dad could take an eight-dollar kitchen gadget and use it to make his life a bit more bearable. The random gadget: a digital timer.

Why, you ask?

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A letter

When Sis called, I was was keeping an eye on Dad while Mom went to Sheridan to renew her car tags. A few minutes later, I noticed that Dad was becoming quite restless. Shortly thereafter, Sis called, and I told her what was going on.

"If you're the only person there, watching Dad, and you see that he's starting to become restless in his sleep, keep a close eye on him. He's probably having breakthrough pain. Don't feel guilty about this—just go ahead and punch the button on his morphine dispenser to give him a bit of extra pain medication. Right now, rest is the best thing for him."

"So I should go ahead and give him one now?"

"Wouldn't hurt."

I cradled the cordless phone between shoulder and ear, and ever-so-quietly opened the velcro pouch that contained the dispenser for his pain medication. I pressed the "Dose" button, heard the two high beeps, and shortly thereafter Dad settled back down into a more peaceful sleep.

twenty, twenty-two

I'm going to sit here quietly and just stare at the computer screen. Mom and Dad are…well, it might be an argument if Dad was capable of keeping a train of thought going for more than a couple of minutes.

Sometimes morphine is a bit of a blessing.

Dad has gotten a bit of a wild hair this morning, insisting that he and mom should go downstate today or tomorrow to visit his brother, who is a CPA and always does Mom and Dad's taxes for them. Mom is resisting—rightly, I think; Dad can't stay awake for more than a couple of hours at a time, and really doesn't have the strength to make such a trip.We've taken turns on things the past few days, Mom and I have. Fixing breakfast for Dad, bringing him drinks when he's thirsty, helping him get to the back porch so he can take in a bit of sunshine and fresh air.

Those are the easy ones.

There's no place like...

…home.

Pajamas. Your own shower. No more driving. Kitties. Spouse. Did I mention pajamas? Oh, yes, the worn and faded cotton set I've had since high school, with long sleeves and buttons that I've had to re-sew onto the shirt a couple of times.

I told Eleanor that I was going to get up at 6:30, and that I'd be on my way home within just a few minutes. I'm not entirely certain that she believed me, but she said to tap on her door before I left.I thought about things before I curled up on her couch last night (weighing options like showers and pajamas and drive time and such), and decided to sleep in my clothes. The alarm woke me up at 6:30. I made sure everything was in my bag, transferred everything out to my car, and tapped on her door at 6:35.

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Spicy Black-Eye Pea Soup

Yet another recipe from Heather that's been sitting in my inbox for ages and ages, waiting to see the light of day from a post.

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Dreams of spring cleaning

Spring is coming. I can feel it at the genetic level: the domestic genes I inherited from my mother have activated themselves in the past three days. Normal thoughts of house maintenance have given way to dreams of spring cleaning, rearranging, and item-tossing. As a result I've caught myself resembling my cats, prowling around the house and looking for a mess to dip my hands into.

I hung new things in the hallway. Finally moved my bits of clothing from the bureau to the dresser, so as to give Jeff more room. (How odd is it that he needs more room for clothing than I do?) Started working on excavating the kitchen table. Day two of working on the kitchen.

Perhaps tomorrow I'll tackle the horrid mess that is the reading room. I'm still pondering painting the master bedroom blue. I want to—desperately—but the bedroom needs more work before that can happen.

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Lost: two ruby slippers, size 6

I wonder if I just come out and say it, will it make it any easier? My sister called me this evening, not ten minutes before we were supposed to leave for Sean's birthday party.

(Recent lesson, well learned: no call whose caller ID number starts with "501" is a call that brings good news. If a family member has something to say that can't wait until one of my regular calls, it can't be good news.)Today's was the news that Dad did not recognize my sister or my nephew—his grandchild.

My father adores that red-headed grandson of his, and has since the moment he was born. Today he asked my mother who the boy was.

When my sister told me, I cried. Then dried my eyes and went to Sean's birthday party. Because some things have to be done, and friends cannot be walked away from, birthdays left uncelebrated. I cried on the way home. I went to the bathroom and shook out two aspirins for my rapidly-worsening tension headache and just…squalled.

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My doorjamb hates you

I can already tell that this particular entry is probably going to get me in trouble. So, let me sit down with a cup of hot chocolate and my comfortable Friday-night-slobbing-around-the-house clothing and just tell you like it is. You know, the kind of talks your mother used to have with you when you were too young and too stupid to understand that just because Aunt Bertha was really really fat didn't mean that you were allowed to come right up to her in front of her and her thirteen grandchildren to tell her that she was fat. On her birthday, no less.

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Comfort care, a matter of time.

It is a matter of time, they say—yours and mine, and someone else's who doesn't even realize it at the moment.

I have been in Arkansas since early Sunday morning. How early, exactly? I don't remember; I don't remember when I crossed the Mississippi River, but I do remember that I was sobbing when I did.

We spent Saturday in Nashville with Dan, who was in from Michigan to help the UMich lacrosse team out (he videotapes their games). We spent an absolutely wonderful day there with him, and drove back in the early evening.

A day spent in Nashville, laughing it up with Dan, who was visiting from Michigan.

It's hard to look at this photo objectively; I look so happy in this photo, but it's colored by the knowledge I have now:  a few hours after this photo was taken, I got a call saying my father was dying, and that I needed to come home immediately.

The smile just doesn't look the same after that.Jeff, Dan, Amy

An oh-so-rare photo op with Dan before the lacrosse game.Flickr What happens when you ask two engineers to pose...you get mostly silliness.Flickr What happens when you ask two engineers to pose...Flickr Well, Dan always said I was short.  I'm just trying to make it look really true.Flickr

For now, silence.

Dad.

August 4, 1945—March 19, 2002.

My mother stood by his left side, stroking his shoulder. My sister held his right hand, and I his left. Dad quietly stopped breathing at 5:31 p.m.

We were not surprised. We'd had several hours of warning.

Dad is no longer in pain. For this, I smile.

My father was a founding member of the Tull fire department, and it was one of the things that he cared about most. In lieu of flowers, donations may be made to the following:

Three roses

Visitation is over, at last. Call me selfish, but I'm glad it's over.

We've had a houseful of visitors today, and—in the great Southern tradition—they all brought food. The fridge is full to bursting, and we have drinks and paper plates and sandwiches to spare.

To quote my brother-in-law: "Don't eat that cherry pie."

"Not good?"

"Nah. I'll eat it. Wouldn't want y'all to get sick or anything."

Last I checked, Carl had eaten about three generous slices of pie so far. There's one piece left, and I fully expect that Carl will come over and polish it off with lunch.

We had a bit of a fracas today when we learned that at least one of the local florists told their customers that Dad's visitation was from 6-8 p.m. today instead of the 7-9 p.m. that it actually was. In order to prevent any hurt feelings, Jeff and I were at the funeral home just before 6 so that the people arriving early would see at least one member of Dad's family.

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A blessing from the air

I didn't expect to laugh today. I expected to cry. But maybe it was something in the weather that kept the tears away. Maybe something about the fact that my father died in the middle of one of the most enormous and long-lasting rainstorms in recent memory, but that today turned out to be one of those achingly clear and crisp early-spring days that Arkansas occasionally dishes up in March, that gave my heart a lift. But maybe, just maybe, it was something else entirely.

The nocturnal daughter

They knew me as the night shift for my family; the nocturnal daughter who stayed up at night in order to force her mother to get a few hours of sleep.

This was the tenth floor, the top floor, the no-man's-land. The cancer ward. Oncology, for those who knew the term. Well-hidden above such popular destinations such as the maternity and intensive-care floors, it was not a floor one journeyed to randomly.Even during the daytime, it was quiet. On most of the floors of the hospital, rooms marked "Oxygen In Use" were the exception. Here, they were the rule.

Those people journeying up to the tenth floor were more likely to talk to each other, more likely to be carrying suitcases. One, a careworn blond woman toting an overnight bag, gave me a compassionate look and asked, "Who are you here for?"

"My father. You?"

"My mother. Will he go home?" she asked quietly.

"No. Will your mother?"

"I don't think so." She looked down.

Japanese maple

Home, yesterday, after a Sunday night dinner with Colter and a Monday afternoon shopping-and-lunch combination with Susan. Home, the land of very large orange-and-white cats and a spouse that missed me. Home, with a pile of movies (and dust bunnies, and bills) waiting on me.

Home.

One week and it all changes. A week ago on Saturday my priority was to get home from Nashville so that I could tidy up the kitchen. A kitchen which, now, is filled with lilies; next to a living room which smells of lilies. Heather and Andy sent a set of impossibly large and glossy stargazer lilies. The kitchen, instead of being covered over with dishes and plates and cooking detritus, now has calla lilies taking up almost every available inch of counter space.

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Think of the souls you'll save

While we were at the hospital, Mom asked me why I volunteered to turn my days and nights around so that I could stay up with Dad during the night. It was hard to explain why, exactly, but it had something to do with contrary nature and my need for solitude. When I tried to explain this to Mom, I think it all came out wrong, but I eventually managed to maneuver my words into the direction they needed to go: "It's not that I don't want to see the friends and family that come to see Dad during the day. It's that I just do better when it's just Dad and me."

Her "I don't understand but I'll take that weird answer and run with it" shrug told me all I needed to know. I've never claimed to be anything but the oddball of the family. Not a black sheep, but perhaps a grey sheep. Or a paisley sheep. Not rebellious; just different.

Returning, albeit slowly

Ever have so much to say that you don't know where to start? I've been like that for the past couple of days; too much to say, too many people to say it to, and the end result is that I close down my email application and go do something else for a little while. The letters and thank-yous stay unwritten, but the lack of writing seems to do nothing but keep them in the forefront of my mind.

I've been moved, often to tears, by the words of others. Words, sometimes, from the most unexpected of places: Andrew's brother, out in North Carolina, whom I haven't seen in a few years. From my cousins. From those random people out in the world who have found this site.

One, though, brought home the reality of what I've been facing. Today's mail held a card, postmarked Chicago. I only know one person in Chicago, and the handwriting on the envelope matched his particular scrawl—Matthew.

Red beans and rice

This one's pretty simple, actually; much simpler than most restaurants would like you to think that it is. The key element for this recipe is, yes, time. Plenty of it. From my point of view, there's simply no way around it. This recipe won't thicken properly if the beans haven't had time to cook down and release starch molecules in the water, and cooking down beans just takes time.

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Rainy, on principle

It was a rather late hour, later than I cared to admit, when I tiptoed in from the guest bedroom to our bedroom. Jeff was mostly awake, but not quite, as I slipped in under the covers and snuggled up next to him.

"I had bad dreams last night," I said, leaving it at that. Jeff has shared the same bed with me long enough to know that when I have bad dreams, I tend to awaken out of them only to go right back in them. The end result: a long night, filled with multiple awakenings, with little useful sleep actually acquired. When nights like this happen, I end up moving to the guest bedroom so that Jeff, at least, will get a quiet night of sleep.

Morning was almost over, but the sluggish darkness from around the mini-blinds spoke of storm clouds, making it appear much earlier in the morning. Behind my head, the rain slashed against the windowpane. Perfect. He yawned, I yawned, and pulled the covers up to my neck.